antiphosholipid syndrome
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HOW TO EXPLAIN LUPUS TO PEOPLE WITH FUNCTIONING IMMUNE SYSTEMS.
Long time no post! Hello good people! I hope you’ve been keeping well. Let’s start off this Lupus awareness month with this article borrowed from Lisa Walters. A question I get asked a dizzying amount is, “But what is lupus, Lisa?” Followed sometimes by “and how does it affect you?” It’s not like I go…
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24 THINGS PEOPLE WITH ARTHRITIS WANT YOU TO LEARN ON WORLD ARTHRITIS DAY.
October 12th was World Arthritis Day, so it is especially important right now to raise awareness, correct misconceptions, and promote education and understanding of those living with arthritis. (Though I’m a month late, it’s never too late to spread the word). The original article was written by Paige Wyant. Although arthritis is commonly thought of…
Anti-phospholipid Antibody Syndrome, antiphosholipid syndrome, APS, Asthma, autoimmune diseases, Chronic fatigue, chronic illness, chronic inflammatory demylinating myelopathy, chronic pain, Demylinating Myelopathy, Depression, dynamic disability, Fibromyalgia, hemiplegic migraine, invisible disabilities, Invisible illness, Lupus, Mental health, Migraines, Mixed Connective Tissue Disease, myalgic encephalomyelitis, Neuropathy, PERIPHERAL NEUROPATHY, Polymyositis, raynaud’s phenomenon, Retinal vasculitis, Rheumatoid Arthritis, sciatica, stiff person syndrome, Systemic Lupus Erythematosus -
COMMON PAIN MYTHS AND MISCONCEPTIONS.
By Wendy Magnoli, Ph.D., Licensed Psychologist, Dean Stroud Spine and Pain Institute at Shepherd Center. We’ve seen tremendous progress in pain and its management over the past several years. However, there are still a lot of myths and misconceptions out there. Here are the top 10 myths I hear most frequently: 1. If you cannot find the…
alopecia, antiphosholipid syndrome, APS, Asthma, autoimmune diseases, Chronic fatigue, chronic illness, chronic inflammatory demylinating myelopathy, chronic pain, Demylinating Myelopathy, Depression, disability, dynamic disability, Fibromyalgia, hemiplegic migraine, invisible disabilities, Invisible illness, Lupus, Mental health, Migraines, Mixed Connective Tissue Disease, myalgic encephalomyelitis, PERIPHERAL NEUROPATHY, Polymyositis, raynaud’s phenomenon, Retinal vasculitis, Rheumatoid Arthritis, sciatica, stiff person syndrome, Systemic Lupus Erythematosus, warfarin -
THE 21 WORST PARTS OF HAVING MULTIPLE CHRONIC ILLNESSES.
As someone juggling 10 chronic conditions, I recently came across this post and could relate to every single point, so I thought I’d share it here. The original was written by Paige Wyant Living with one chronic illness is challenging enough. There are of course the physical symptoms of your disease to deal with, but…
Anti-phospholipid Antibody Syndrome, antiphosholipid syndrome, Asthma, autoimmune diseases, Chronic fatigue, chronic illness, chronic inflammatory demylinating myelopathy, chronic pain, Demylinating Myelopathy, Depression, dynamic disability, Fibromyalgia, hemiplegic migraine, invisible disabilities, Invisible illness, Lupus, Mental health, Migraines, Mixed Connective Tissue Disease, myalgic encephalomyelitis, PERIPHERAL NEUROPATHY, Polymyositis, raynaud’s phenomenon, Retinal vasculitis, Rheumatoid Arthritis, sciatica, stiff person syndrome, Systemic Lupus Erythematosus, warfarin -
WHAT DISABILITY PRIDE MONTH MEANS TO ME.
July is Disability Pride Month, and I would like to start by first sharing with you the meanings behind the parts of the Disability Pride flag! It was created by Ann MaGill, with the input of other Disability activists. Flags can raise awareness and are a symbol of solidarity, pride, and acceptance, and the Disability…
Anti-phospholipid Antibody Syndrome, antiphosholipid syndrome, Asthma, autoimmune diseases, Chronic fatigue, chronic illness, chronic inflammatory demylinating myelopathy, chronic pain, Demylinating Myelopathy, Depression, disability, dynamic disability, Fibromyalgia, invisible disabilities, Invisible illness, Lupus, Mental health, Mixed Connective Tissue Disease, myalgic encephalomyelitis, Polymyositis, Rheumatoid Arthritis, sciatica, stiff person syndrome, Systemic Lupus Erythematosus -
THE DAILY PRODUCTION OF APPEARING WELL AS A CHRONICALLY-ILL PERSON.
Living with a chronic condition makes the world seem like a stage, and I feel like an actor on it. I feel like I am acting every day when I venture out into the world, often for my own benefit. As a result, maintaining good appearances becomes a daily performance; pretending that nothing is wrong with…
antiphosholipid syndrome, Asthma, autoimmune diseases, Chronic fatigue, chronic illness, chronic inflammatory demylinating myelopathy, chronic pain, Demylinating Myelopathy, Depression, dynamic disability, Fibromyalgia, hemiplegic migraine, invisible disabilities, Invisible illness, Mental health, Mixed Connective Tissue Disease, myalgic encephalomyelitis, PERIPHERAL NEUROPATHY, Polymyositis, raynaud’s phenomenon, Rheumatoid Arthritis, stiff person syndrome, Systemic Lupus Erythematosus -
8 THINGS I HAVEN’T TOLD MY FAMILY & FRIENDS ABOUT BEING CHRONICALLY SICK.
I came across this article by Sara Naveed that resonated on every level, so I thought I might share it here: If someone were to ask me to describe what it’s like to live with a chronic illness, I honestly wouldn’t know what to say. Perhaps it’s the expectation of living a normal life and…
antiphosholipid syndrome, Asthma, autoimmune diseases, Chronic fatigue, chronic illness, chronic inflammatory demylinating myelopathy, chronic pain, Demylinating Myelopathy, Depression, dynamic disability, Fibromyalgia, hemiplegic migraine, invisible disabilities, Invisible illness, Lupus, Mental health, Mixed Connective Tissue Disease, myalgic encephalomyelitis, PERIPHERAL NEUROPATHY, Polymyositis, raynaud’s phenomenon, Retinal vasculitis, Rheumatoid Arthritis, sciatica, stiff person syndrome, Systemic Lupus Erythematosus -
STIFF-PERSON SYNDROME.
March 15 is International Stiff Person Syndrome Awareness Day, so I thought I’d create awareness about this rare disease. 15 years ago, when I was in the throes of unexplainable symptoms cropping up and doctors having absolutely no idea what to do with me, I started experiencing full body paralysis. I’d be paralyzed from the…
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30 LESSONS THAT ILLNESS HAS TAUGHT ME.
Today is 01st February 2023, and thirty years ago, a bouncing baby girl was born, so happy birthday to me!For the past 18 years, I have lived with several autoimmune conditions; conditions that are a major part of my day-to-day life, and that I’ve become quite good at co-existing with.Even though life with these chronic…
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HOW ACCEPTANCE CAN TRANSFORM OUR RELATIONSHIP WITH CHRONIC ILLNESS.
When chronic illness shows up, it often robs us of our plans. It reroutes the itinerary we had for our life. It steals the future we imagined. It diminishes our capacities and transforms our circumstances. It kicks our ass and demonstrates with absolute clarity (in ways that many of us are not accustomed to being shown) that…
Anti-phospholipid Antibody Syndrome, autoimmune diseases, Chronic fatigue, chronic illness, chronic inflammatory demylinating myelopathy, chronic pain, Demylinating Myelopathy, dynamic disability, Fibromyalgia, Mixed Connective Tissue Disease, Neuropathy, Polymyositis, Rheumatoid Arthritis, stiff person syndrome, Systemic Lupus Erythematosus
Mixed Connective Tissue Disease (MCTD) Warrior's Blog 